So, Wednesday of this week was an awesome and perfect day. Alyssa was taking all her feedings awesome with no issues. She was eating her whole bottle in 15 to 20 minutes with no issues. Our feeding goal was in sight and looking like we could go home next week. She took her first stroller ride out of her room with me to dinner in the cafeteria. I was so excited and happy. (The little things.)
Then Thursday came and Alyssa was fighting the feedings and throwing them up.
Now we are back to square one. After 48 hours of no food and a VERY ANGRY Alyssa, we now have a new PICC line to get her nutrients, have a feeding tube and are starting back at 5cc's an hour. A drastic change from a few days ago with no wires. We know Alyssa likes to eat and she has a pair of lungs on her. It was heart wrenching to hear her cry, know what she wants and not be able to give it to her. We are easily going to be here another couple weeks. It is hard to see the end so close and then have to start over. The doctor said that we will be able to start bottle feeding her in a couple of days a few times a day. But not for every feeding. We are worried abot a portion of her bowel that has stretched out and appears to not be functioning properly. We are hoping that it just needs some more rest and giving it some rest the past few days and with smaller, slower feeds it will work properly.
It has been a very difficult few days. We jut want to get Alyssa better and go home. I sure do miss being home.
Then Thursday came and Alyssa was fighting the feedings and throwing them up.
Now we are back to square one. After 48 hours of no food and a VERY ANGRY Alyssa, we now have a new PICC line to get her nutrients, have a feeding tube and are starting back at 5cc's an hour. A drastic change from a few days ago with no wires. We know Alyssa likes to eat and she has a pair of lungs on her. It was heart wrenching to hear her cry, know what she wants and not be able to give it to her. We are easily going to be here another couple weeks. It is hard to see the end so close and then have to start over. The doctor said that we will be able to start bottle feeding her in a couple of days a few times a day. But not for every feeding. We are worried abot a portion of her bowel that has stretched out and appears to not be functioning properly. We are hoping that it just needs some more rest and giving it some rest the past few days and with smaller, slower feeds it will work properly.
It has been a very difficult few days. We jut want to get Alyssa better and go home. I sure do miss being home.
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5 comments:
My prayers are with you all...derrelyn
I think about you and pray for you everyday. God Bless you all.
Kim #3
God Bless you all. I have kept you in my prayers and will continue to.
Kim #3
We love you guys. You are in our thoughts and prayers. Keep stong you guys will make it.
Kim, all the words can't express how much Sophia and I feel for you and NJ! You know God has your best interests! And it is okay to be pissed off at him right now! But he will bring Alyssa home soon! Keep your strength up and hopefully this will all be a distant memory soon. But please know Sophia and I have you, NJ and Alyssa in our prayers. If there is anything I can do to take some burden off you please let me know. I will see you on Wednesday afternoon!!! Hugs, Susan
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